PH Patients Perspective Symposium 2023

Join us at the first-ever PH Patients Perspective Symposium to be held in South Africa hosted by The Jenna Lowe Trust and PHA SA

For PH Patients, Carers and their families as well as doctors, med students and allied health professionals with a specific interest in Pulmonary Hypertension.

Where: Faircape Health Estate Clubhouse – Tokai Cape Town

When: Saturday 13th May 2023

Time: 08H00 till 17H15 pm – full day symposium

Cost: R250 per person ( state patients can apply for sponsorship by emailing hilbar@mweb.co.za)

Programme:

08:00 – 08:30    Registration at Faircape Health Estate Clubhouse in Tokai

08:30 – 09:00:   Welcome: Gabi Lowe – Director – The Jenna Lowe Trust and Callista Greeff – Chairperson – PHA SA

09:00 – 09:30    Dr Greg Symons: Overview of PH clinic at Groote Schuur – what we are learning from the PH registry and more

09:30 –  10:30    Dr Paul Williams & Prof Greg Calligaro:

Dr Williams Overview of PH clinic and lung transplantation in Johannesburg

Prof. Greg Calligaro: Overview of lung transplantation at Groote Schuur

10:30 – 11:00   Tea break: Refreshments served

11:00 – 12:30     Interactive Panel Discussion with Q&A: Establishing a team – why collaboration and advocacy are so important as a patient

Dr Paul Williams (Pulmonologist); Dr Greg Symons (Pulmonologist) , Judith Johnson (Dietician); Samantha Holtzhausen (Physiotherapist); Jackie Hoare (Professor of Psychiatry); Shaakira Bodhania (PH kids SA)

12:30 – 13:00   Talk by Kelly Du Plessis – Rare Diseases SA: Patient Advocacy – it is important, how do we go about it? 

13:00 – 14:00    Lunch break – meal and refreshments served 

14:00 – 14:15:   Marchelle Lake from Tokai Physiotherapy: The importance of rehabilitation

14:15 – 14:45:   Prof. of Psychiatry Jackie Hoare: Mental Health and living with Chronic Illness 

14:45 – 15:30:    Patient’s Stories

15:30 – 16:15:  Tea break and an opportunity for patients to talk to and mingle with all the experts in the room 

16:15 – 17:00    Prof. David Badesch, University of Colorado, CO (UCD) – Global Expert on PH – The Current Global Pulmonary Hypertension Landscape

17:00 – 17:15:   Q&A for 15 mins

17:15:               Programme Closing

BOOK HERE